The data set development for the National Spinal Cord Injury Registry of Iran (NSCIR-IR): progress toward improving the quality of care

Azadmanjir, Z. and Jazayeri, S.B. and Habibi Arejan, R. and Ghodsi, Z. and Sharif-Alhoseini, M. and Kheiri, G. and Zendehdel, K. and Safdarian, M. and Sadeghian, F. and Khazaeipour, Z. and Naghdi, K. and Arab Kheradmand, J. and Saadat, S. and Pirnejad, H. and Fazel, M.R. and Fakharian, E. and Mohammadzadeh, M. and Sadeghi-Naini, M. and Saberi, H. and Derakhshan, P. and Sabour, H. and Benzel, E.C. and Oreilly, G. and Noonan, V. and Vaccaro, A.R. and Emami-Razavi, S.H. and Rahimi-Movaghar, V. (2020) The data set development for the National Spinal Cord Injury Registry of Iran (NSCIR-IR): progress toward improving the quality of care. Spinal cord series and cases, 6 (1). p. 17.


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STUDY DESIGN: Descriptive study. OBJECTIVES: The aim of this manuscript is to describe the development process of the data set for the National Spinal Cord Injury Registry of Iran (NSCIR-IR). SETTING: SCI community in Iran. METHODS: The NSCIR-IR data set was developed in 8 months, from March 2015 to October 2015. An expert panel of 14 members was formed. After a review of data sets of similar registries in developed countries, the selection and modification of the basic framework were performed over 16 meetings, based on the objectives and feasibility of the registry. RESULTS: The final version of the data set was composed of 376 data elements including sociodemographic, hospital admission, injury incidence, prehospital procedures, emergency department visit, medical history, vertebral injury, spinal cord injury details, interventions, complications, and discharge data. It also includes 163 components of the International Standards for the Neurologic Classification of Spinal Cord Injury (ISNCSCI) and 65 data elements related to quality of life, pressure ulcers, pain, and spasticity. CONCLUSION: The NSCIR-IR data set was developed in order to meet the quality improvement objectives of the registry. The process was centered around choosing the data elements assessing care provided to individuals in the acute and chronic phases of SCI in hospital settings. The International Spinal Cord Injury Data Set was selected as a basic framework, helped by comparison with data from other countries. Expert panel modifications facilitated the implementation of the registry process with the current clinical workflow in hospitals.

Item Type: Article
Additional Information: cited By 0
Subjects: WL Nervous System
Depositing User: eprints admin
Date Deposited: 12 Sep 2020 03:35
Last Modified: 12 Sep 2020 03:35

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